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12-04-2008, 09:02 AM
|  | Registered User
Owner; Cody Electric Basses | | Join Date: May 2006 Location: bartlett illinois | | | My daughter was on Chemo because a hemangioma
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They're commonly called a Stawberry birth make and are usually no big deal, but what she has PHACE syndrome can be life threatening, Thankfully, the Chemo & steroids and meds did what they are suppose to and she is mostly cool now. My wife has put together a online petition to show the need for research, if you can please read it, email it, and if you agree and are over 18 sign it.
If this is against the posting rules. I missed it when I read and I'm sorry please delete the post http://www.petitiononline.com/NOVA2009/petition.html
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12-04-2008, 09:18 AM
|  | The Lowdown Diggler | | Join Date: Apr 2006 Location: Huntington Beach, CA | | Signed. Number 249. Give your little girl a kiss for me.  |
12-04-2008, 09:18 AM
| | Registered User | | Join Date: Feb 2005 Location: Edinburgh & Dundee, Scotland | | done, I was number 250
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12-04-2008, 09:21 AM
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Unofficialy endorsing EBMM, Avatar Speakers | | Join Date: Feb 2002 Location: Seattle (ish), WA | | | Done, 252. |
12-04-2008, 09:24 AM
| | Registered User | | Join Date: Apr 2002 Location: West Side SA | | | signed
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Last edited by NJL : 12-04-2008 at 10:29 AM.
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12-04-2008, 09:28 AM
| | Registered User | | Join Date: Sep 2008 Location: Fort Worth, Texas | | | #257 |
12-04-2008, 09:30 AM
|  | Groovin' Eskrimador
Lark in the Morning Instructional Videos; Audix Microphones | | Join Date: Dec 2007 Location: Santa Cruz Mtns, California | | | #259. Nice to see the numbers going up.
Hugs for your little recovering one from out here in CA.
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Zon, Genz Benz, BFM and LDS
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12-04-2008, 09:32 AM
| | Registered User | | Join Date: Sep 2005 Location: Istanbul | | #261. Give her a hug for me.
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12-04-2008, 09:32 AM
|  | The older I get, the better I was. | | Join Date: Sep 2005 Location: Pasadena, CA | | | 260
My daughter was born with a hemangioma on the back of her head, but thankfully no other issues were involved.
I wish you and your family all the best - mojo from So Cal. |
12-04-2008, 09:33 AM
|  | That's the way uh huh uh huh I like it.. | | Join Date: Sep 2006 Location: Robbinsville, NJ | | | #263
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12-04-2008, 09:35 AM
| | Registered User | | Join Date: Oct 2008 Location: (M)a$$hole. | | | signed.
My Daughter had a seriously big Strawberry on top of her head that thankfully had no issue. I pray for good health and good future for your child. |
12-04-2008, 10:07 AM
| | Registered User
Owner; Cody Electric Basses | | Join Date: May 2006 Location: bartlett illinois | | | Thank Guy's
Emilia is great and we are few years removed from the worst if it. but I'll give her all the hugs anyway!
My wife has been envolved with various groups and we are FINALLY at a point where we are trying to make some good out of what thas a really bad time.
Hugs and blessings to all your guys young ones.
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12-04-2008, 10:11 AM
| | The Lowdown Diggler | | Join Date: Apr 2006 Location: Huntington Beach, CA | | | I have a niece that has been diagnosed with NF1. I won't bum you out with the details. Google it. Can be potentially scary stuff that will cause her a painful death. They suspected that she had it as a baby, but doctors are unable to officially diagnose until 7 years old when they have a complete history. Well sadly, it's official. I hate hearing about little one's suffering. Good luck my friend. |
12-04-2008, 10:44 AM
|  | (((o))) Moderator | | Join Date: Jul 2003 Location: Antwerp, Belgium | | | Signed |
12-04-2008, 10:58 AM
| | Registered User | | Join Date: Dec 2007 Location: Memphis,Tn | | | 280, Best of luck... |
12-04-2008, 11:13 AM
| | Registered User | | Join Date: Mar 2007 Location: Boston | | Quote:
Originally Posted by MakiSupaStar I have a niece that has been diagnosed with NF1. I won't bum you out with the details. Google it. Can be potentially scary stuff that will cause her a painful death. They suspected that she had it as a baby, but doctors are unable to officially diagnose until 7 years old when they have a complete history. Well sadly, it's official. I hate hearing about little one's suffering. Good luck my friend. | I was under the impression that NF1 wasn't fatal unless it was a very severe case?
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12-06-2008, 08:39 PM
| | Registered User
Owner; Cody Electric Basses | | Join Date: May 2006 Location: bartlett illinois | | | Just got word from Mrs. davec, they are hoping for 1000 by January. I suggest keeping your email private and thanks
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12-06-2008, 08:46 PM
|  | Some carrots are humiliated publicly | | Join Date: Nov 2005 Location: Syracuse, NY | | 416
__________________ Joel: "What do you want for Christmas, Crow?" Crow: "I want to decide who lives and who dies." Gadabout |
12-06-2008, 08:58 PM
|  | no really, smokemeth&hailsatan | | Join Date: Dec 2005 Location: Pueblo, CO | | | 417 |
12-06-2008, 09:14 PM
| | Registered User | | Join Date: Apr 2005 Location: 97465 | | | 418
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