Please help: Lyme disease

D.A.R.K. · #1 04-14-2010, 11:06 PM

ok, so my nephew is 10.
he contracted lyme disease...
unfortunately, he didn't have any of the normal symptoms(swollen knees, for example).
it was not caught for a year...
they figured it out and ran antibiotics straight to his heart.
well, unfortunately here is the most recent word on his condition:
the hypothesis that this has become an autoimmune
disorder/damage in the autonomic nervous system of the brain (kind of the brain stem), sort of like MS, triggered by the Lyme in is Cerebral Fluid. It is so rare, there is no real research on this yet, but does fit his issues.
lots of tests still being run...
we are sparing no expense at finding the cure, all the specialists we can find/ are referred to are being contacted.
the poor little guy was very active; ice hockey, soccer, baseball...
now he can barely watch cartoons or have a conversation.
no brain damage or anything...
we know he's in there, but the physical discomfort keeps him from normal communication.
he gets wild vertigo when he tries to think complex thoughts....
so, basically, we are all scared sh!tless right now.
if anyone has any referrals they can give me, please pm me.
for religious folks, please pray for him (any and all religions!).

IconBasser · #2 04-14-2010, 11:12 PM

man, sorry to hear that! Poor guy... I'll keep him in my thoughts, if that means anything...

D.A.R.K. · #3 04-14-2010, 11:18 PM

thank you. it all helps...

UncleFluffy · #4 04-14-2010, 11:20 PM

That's awful news. My sympathies are with you and your family.

There's a lot of ongoing research into autoimmune disorders. Fingers and toes crossed here for the guy.

JimmyM · #5 04-15-2010, 01:24 AM

oh man, that's so sad...really breaks my heart. hope the little guy ends up ok, bro.

capnsandwich · #6 04-15-2010, 01:27 AM

Praying for him in Ohio.

D.A.R.K. · #7 04-15-2010, 01:33 AM

thanks guys...
i figure it couldn't hurt to reach out, even to a bass forum,
to see if anyone else had encountered such a thing.
you never know unless you look...

Relic · #8 04-15-2010, 07:45 AM

Wow, that's terrible!
Do they think that the antibiotics will eventually knock it down enough that he'll get some relief?
Poor kid! Prayers and good vibes heading his way.

hover · #9 04-15-2010, 08:08 AM

my heart aches from reading this. My prayers to the little man.

DblG · #10 04-15-2010, 10:07 AM

That's awful, very sad to hear. Prayers & thoughts headed his way.

My kids are 8 & 10 and reading things like this makes me want to put them in a bubble...

mpm32 · #11 04-15-2010, 10:15 AM

Call Connecticut Children's hospital. I'm pretty sure they have an expert on lyme and other insect borne illnesses.

I can't recall his name but my daughter had something that they thought was lyme it wasn't, and we dealt with him.

Also, they first found lyme in CT so I'm pretty sure they have lots of knowledge here.

D.A.R.K. · #12 04-15-2010, 02:07 PM

mpm,i think they are actually currently dealing with a doctor on staff there,
thanks for the tip though...
is it dr. Charles Ray Jones by any chance?
the antibiotics did work on him to an extent, but unfortunately the disease was able to develop for nearly a year before it was caught...
he was so active, never showed symptoms or complained/ appeared to be sick. apparently the disease is on the rise and mutating.

Jay Ralston · #13 04-15-2010, 02:34 PM

I am a Christian pastor. I will be praying for him. PM me if there is anything else that I can do. Actually, would you mind pm'ing me his name so when I do pray for him, I have have his name. I know God already knows it but I don't.

**Vorago** · #14 04-15-2010, 05:31 PM

Damn, I've had my share of trouble with ticks, and the danger of Lyme is always there.

I hope everything turns out ok!

Good vibes coming your way!

SBassman · #15 04-15-2010, 05:40 PM

Praying for him.

MakiSupaStar · #16 04-15-2010, 05:52 PM

Geez this is just awful. Poor guy. You know I'm throwing out positive vibes for him. Hang in there Doug.

bocasfx · #17 04-16-2010, 06:07 AM

http://www.sciencedaily.com/releases...0304091818.htm

D.A.R.K. · #18 04-16-2010, 11:44 AM

thank you everyone....
major tests yesterday, we will know more soon.

Quote:

Originally Posted by bocasfx

http://www.sciencedaily.com/releases...0304091818.htm

wow, that is really interesting....
symbiotic relationships in nature are often the key to species survival...
funny how the cutting edge is sometimes just looking at the existing world around us.

Relic · #19 04-16-2010, 11:47 AM

please keep us posted? I've been thinking about him today. Poor kid, I hope that he ends up beating the crap out of this, I really do.

bocasfx · #20 04-16-2010, 03:01 PM

Quote:

Originally Posted by D.A.R.K.

thank you everyone....
major tests yesterday, we will know more soon.

wow, that is really interesting....
symbiotic relationships in nature are often the key to species survival...
funny how the cutting edge is sometimes just looking at the existing world around us.

I learned about hookworms and auto immune deseases here:

http://www.thisamericanlife.org/radi...nemy-camp-2010

Check "Act Iii. As The Worm Turns." I hope it helps.