Its been a while since I posted on TB (Hi everyone!), but I felt I had to share this story: http://www.youtube.com/watch?v=lK0lVG4ZuAI Ive met both Jason and Jayden, and even got a hug from the little guy. Jayden takes a form of medicinal marijuana to control his seizures. He suffers from Dravet (Dra-VAY) Syndrome (DS), a catastrophic form of epilepsy characterized by intense seizure clusters and even status epilepticus (a seizure or a near-continuous seizure episode lasting longer than 30 minutes). These types of seizures are life-threatening, and DS as a result has a high mortality rate. DS is notoriously resistant to effective control by most AEDs (anti-epileptic drugs), and most kids with Dravet continue to have terrible seizures despite taking large doses of meds. As a parent of a child with a closely related disorder, Im part of a DS support group. Its emotionally tough to check in there; these kids are really sick, and every so often someone in the group loses their child. At this point, it might be useful to reiterate a few facts the video treats quickly: 1) Jayden does not smoke or inhale anything. The MMJ he is given is taken orally, as an oil. It is also lab tested to ascertain potency. 2) Jayden is not getting high off the marijuana. The anti-epileptic agent at work is cannabidiol (CBD), which is NOT psychoactive (doesnt get people high). The special strains of marijuana that the high-CBD ratio meds are made from have almost no THC in them. These strains are extremely rare, being of no use recreationally (MJ that doesnt get you high isnt terribly popular), and only limited use medically (since most people are specifically seeking to take the THC). Prior to going on the high-CBD MMJ treatment, Jayden was hospitalized over 40 times for seizures. They had tried nearly every AED on the market worldwide, going so high in dose at times as to make Jayden almost unresponsive. He could not walk or talk, and he was barely able to eat. Since going on the high-CBD medicine, Jayden has not had to be hospitalized a single time; his seizures have been drastically reduced in number and severity. Moreover, as a result of decreasing the high doses of the pharmaceutical meds he was on, he is now able to run and is starting to talk. Some of you may be tempted to dismiss this as coincidence, or maybe as just BS. And Id probably be in agreement with you if I didnt know Jason personally, AND know of several other children with similar conditions who are also benefiting enormously from this treatment. Unlike Jason, the parents of the other kids are keeping a very low profile (for obvious reasons). Its also kind of hard to argue that a placebo effect is at work here: the effects of the medicine are seen in the reduction of seizures, which is quantifiable, as opposed to measuring a sense of well-being. When you have several developmentally delayed children experiencing a 80-90+% reduction in seizures, its kind of hard to imagine a placebo effect at work. Before this inevitably devolves into a debate on legalization, I want to make my position clear: Outright legalization doesnt concern me much. But I think its LONG past time marijuana be removed from Schedule I so that research can be done about its potential benefits and risks. Opium, cocaine, and meth are all Schedule II drugs, and you will find few (if any) experts who will argue that marijuana is somehow more dangerous or addictive. It is unconscionable that we may have the key to helping some very sick people close at hand yet continue to play political games. Some people will argue, as does the doctor in the video, that we dont know what the long-term effects of marijuana use on the developing brain are. Thats certainly true, which is why we need research to be done. But it should also be noted that we also dont know what the long-term effects are of having a child on high doses of barbiturates and other powerful meds, 24 hours a day, seven days a week, for years at a time. My own daughter has been on that for over a decade. It took us four years to get her off Phenobarbital, as she was essentially addicted to it. It may well have saved her life at the time, but IMO it certainly has not come without a terrible cost to her intellectual development. The anti-epileptic drugs that we have had to use are very dangerous drugs with some potentially horrific and even fatal side effects. Many of them have not been tested in children, yet we have to try them anyway, for lack of anything else to try. Re-schedule it, and start doing the research! Ill get off my soapbox now. I hope everyone here at TB is doing well. I havent browsed the photoshop threads in months, and I could use a good laugh.