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Hearing loss from viral infection - a cautionary tale

Ladies and gentlemen, I present the following as a warning to others as I have been told that this is not as rare as I might have thought possible.

On Sunday, March 17, 2024, I was in day three of a particularly nasty case of influenza. It is extremely rare for me to be sick, let alone THIS sick. I was running a fever around 101 degrees, was coughing my head off and felt utterly miserable. I went to sleep that night and my hearing was 'normal' (as normal as it could be anyway).

I woke up on Monday, March 18 and had what I would consider to be 95% hearing loss in my right ear and about 20% loss in my left. I wrote this off to head congestion and never really gave it much thought. I was fighting the flu after all.

I got over the flu, but my hearing did not return. It felt like I had water in my ear and that if I shook my head just right, it would come out and I would be able to hear. No such luck.

I contacted my sister, who is a nurse practitioner, and she said I needed a round of steroids. So I got those and hoped for the best. No such luck.

I then went to a clinic and saw a nurse practitioner. She told me I had fluid behind my eardrums. She gave me some prescriptions to help "encourage" the fluid to vacate that area. Again, no joy.

Finally got in to see my primary care doctor, however, she decided not to show up for work that day, so I had to see yet another nurse practitioner, who stated that they would give me a referral to an ENT doctor to get an idea of what is going on. This was at the 5 week mark of the hearing loss being there.

Week 7 rolls around and I get into the ENT doctor. They do a hearing test and find that my hearing is so bad in my right ear that I qualify for a cochlear implant. The physician's assistant sees me and she's an absolute delight. However, she has nothing but bad news with a glimmer of hope. She point blank asks, "When this started, did you have any kind of viral infection?" I tell her that I had the flu. She nodded solemnly and tells me that they see this all too often. The viral infection attacks the auditory nerves, damaging said nerves and causes the hearing loss.

HERE IS THE IMPORTANT PART!!!! It has to be caught within the first 6 weeks!!!!! If it is caught in the first 6 weeks, it can be treated with massive doses of oral steroids, or with steroid injections into the ears and will see a positive result and restored hearing.

Unfortunately for me, I was in week 7. She said there wasn't much hope, but it was worth a try. So I did the massive dose of oral steroids for 2 weeks. I had my follow-up appointment yesterday and there was zero improvement.

So, at this point, they are thinking the hearing loss is very likely permanent. She stated that there was a slim possibility that it would gradually return on it's own in time, but that if it did, it would be very slowly. So, I have an appointment in 6 months. She told me not to get my hopes up, though.

So, TL;DR: If you go to bed one night and your hearing is fine, and you wake up the next morning and you have lost most of the hearing in one or both ears, DO NOT WAIT! Get into see a doctor ASAP. Apparently, my sister had the right idea with the steroids, just not the dosage!

Don't let what has happened to me, happen to you.
 

Sorry to note this. Thanks for the warning. Best wishes. Hope it gets better.

I had a middle-ear problem not so long ago. I treated this with a daily drop or two of aqua ear which is a blend of Glacial Acetic Acid 17.3mg, Isopropyl Alcohol 634mg. etc.,and equalizing using the Valsalva Maneuver every now and then to push the liquid out of my Eustachian tubes.

I have it beat, thank goodness. But I should've gone to the Doctors, in hindsight.
 
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I have had sinus infections, ear infections, and the like that resulted in temporary hearing loss.

Not fun - but what you're describing sounds like my worst nightmare.

Whenever my ears are off, I don't mess around and get straight in to a doctor. Better to be safe than sorry.
 
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Some years ago I had an attack of vertigo. I woke up in the middle of the night, fell out of bed and was nauseated. My doctor said I had a viral infection of the middle ear. I slowly recovered over a couple of months, but my balance has never recovered 100%. I’ve had an handful of vertigo attacks in the years since, but they lasted only a few hours or less than an a day. After reading this, I’m feeling lucky that my hearing was not affected.
 
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Same thing BUT I immediately went to local, incompetent large medical group. TWICE. Same steroids, etc, etc. Finally, with no suggestion of follow up or other treatment, I finally managed to get an appointment weeks later with one of their ENT docs, who was hell bent to sell me hearing aids.

Finally I had sort of given up and went to an audiologist . He gave it to me straight: too late.

He was the one that gave me the bad news. I can only surmise, either gross incompetence AND inability to diagnose at the medical group I first saw or the ENT didn’t want to rat out the Dr. I originally saw (twice) at the same practice when this first happened.
 
I feel you I'm lucky I still have most of my hearing, I'm 37.

But, I had something similar when I was 15-16. It's uncertain if it's what caused me to lose a bunch of hearing, or that's just when I noticed it.

I basically couldn't hear well for a few months. My tubes were blocked, and all I can remember hearing was "my blood flowing".

I finally got my tubes cleared and I could hear pretty much perfectly below 8k.

But I lost anything above 12 k in my right ear, and worst I got tinnitus all over that 12 k range. The tinnitus isn't usually that bad, I can't handle quiet rooms, but a noisy fridge can cover it up.

The problem isn't really the hearing loss, 12 k isn't needed for a lot of things and you naturally lose the high range as you age. The problem is I heavily heavily favour my left ear. Because I'm always trying to filter out the tinnitus. So even though my right ear is mostly fine I basically act as if I'm mostly deaf in my right ear. It's always a shock when I remember I can hear perfectly when holding the phone only over my right ear, yet i never ever do it..

EDIT: I only got my hearing tested 2 years ago, I knew I was missing hearing in my right hear but I had to test it to realise that my high range losses aren't even on the radar of a hearing specialist. I actually thought my right hear hearing loss was quite bad, but turns out it's mostly psychological, due to me trying to filter out the tinnitus for all those years.

It's a strange thing I basically have something like phantom limb syndrome. I feel like I'm missing hearing, when in reality I basically hear perfectly well in the ear.

I normally wouldn't bring it up, but the fact it happened before I was even a legal adult is a bit of a what TF!!
 
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