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The 13 Year Streak is Over

P. Aaron

Supporting Member
Sep 16, 2002
14,296
9,840
Livin’ on a slab in Plano, TX
Since 2010 I've been a lab rat because of an ongoing battle with multiple myeloma, a platelet cancer. I had been at zero since late 2012 showing a "complete response to treatment" and I requested removal from maintenance drugs (napalm) because it messed my internals and I was zeroed out. Earlier this spring my blood work was showing a detectable but not quite quantifiable return of certain proteins that meant the myeloma was creeping back. Levels have risen since then so, we gotta go try and kill it off again. Problem is, my body's the battlefield.

So, Wednesday, I get to start napalming myself again. The readings are a smolder rather than stage III when I began treatment back in 2010 so the dosage and the damage is not nearly as dire. I'm bummed as uncertainty not so much for outcome as what shall this bombardment will do to my internals and being able to perform continually at a somewhat busy schedule allows. I'm going forward anyway and looking forward to many more mornings, practices and murdering Bach among other notations. Hey people, I didn't learn to read notation 'till I was 49, you can do it too!

The first round of visits will be supervised and after a while, I'll be choking down napalm from home.

Do be like me, take your doctor visits seriously and remember we're physiological beings, with cells that at times, can and will rebel. So pay attention to yourselves but don't deny yourself a chocolate donut.
 
Since 2010 I've been a lab rat because of an ongoing battle with multiple myeloma, a platelet cancer. I had been at zero since late 2012 showing a "complete response to treatment" and I requested removal from maintenance drugs (napalm) because it messed my internals and I was zeroed out. Earlier this spring my blood work was showing a detectable but not quite quantifiable return of certain proteins that meant the myeloma was creeping back. Levels have risen since then so, we gotta go try and kill it off again. Problem is, my body's the battlefield.

So, Wednesday, I get to start napalming myself again. The readings are a smolder rather than stage III when I began treatment back in 2010 so the dosage and the damage is not nearly as dire. I'm bummed as uncertainty not so much for outcome as what shall this bombardment will do to my internals and being able to perform continually at a somewhat busy schedule allows. I'm going forward anyway and looking forward to many more mornings, practices and murdering Bach among other notations. Hey people, I didn't learn to read notation 'till I was 49, you can do it too!

The first round of visits will be supervised and after a while, I'll be choking down napalm from home.

Do be like me, take your doctor visits seriously and remember we're physiological beings, with cells that at times, can and will rebel. So pay attention to yourselves but don't deny yourself a chocolate donut.
So sorry to hear this.
 
Stay well partner and keep the faith. Wishing you nothing but the best. Good on you being vigilant. Modern medicine is pretty good at staying on top of things.

I am in 10 years remission from an auto-immune condition that was trying to kill me. I am so lucky. I made it to partial remission and third year into chemo drugs we tried to stop. I had to restart and it got me back to partial remission. Another two years at light dosing and I hit full remission finally. It is easy to say that if this condition hadn't waited until later in life, this would have taken me out. 25 years earlier the drug they treated me with did not exist. Now, just this year, there are two drugs out to treat it without knocking down your immune system. This is after 19 years of research with solid funding behind it. Mind-blowing !

Keep the faith, There is crazy good medical progress out there.
 
Since 2010 I've been a lab rat because of an ongoing battle with multiple myeloma, a platelet cancer. I had been at zero since late 2012 showing a "complete response to treatment" and I requested removal from maintenance drugs (napalm) because it messed my internals and I was zeroed out. Earlier this spring my blood work was showing a detectable but not quite quantifiable return of certain proteins that meant the myeloma was creeping back. Levels have risen since then so, we gotta go try and kill it off again. Problem is, my body's the battlefield.

So, Wednesday, I get to start napalming myself again. The readings are a smolder rather than stage III when I began treatment back in 2010 so the dosage and the damage is not nearly as dire. I'm bummed as uncertainty not so much for outcome as what shall this bombardment will do to my internals and being able to perform continually at a somewhat busy schedule allows. I'm going forward anyway and looking forward to many more mornings, practices and murdering Bach among other notations. Hey people, I didn't learn to read notation 'till I was 49, you can do it too!

The first round of visits will be supervised and after a while, I'll be choking down napalm from home.

Do be like me, take your doctor visits seriously and remember we're physiological beings, with cells that at times, can and will rebel. So pay attention to yourselves but don't deny yourself a chocolate donut.

Please stay positive, stick close to the people who love you the most, and never lose your sense of humor 👍. Thank you for sharing this!!

LISTEN TO YOUR BODY, people. And advocate for yourself, and those who can't advocate for themselves, if you KNOW something is wrong. (My 2.5 year old son developed lympho-blastic lymphoma and multiple doctors said there was nothing wrong. We never gave up fighting for him and finally the doctors found the "mass." He is 9 yrs old now and completely cancer-free).