Hello everybody,
I am 29 and I have been diagnosed with Crohn's disease 5 years ago. At the time of the diagnosis I was in pretty rough shape. I was weeks away from getting my intestine perforated. Luckily not only I managed to recover but I also managed to stabilise my condition. I could go on in detail regarding the symptoms of my case but unless you want me to I would rather not. Point is, it has been very bad, like near-death bad. I eventually also got surgery where a part of my intestine was removed due to a stenosis. I am very happy to say I am very stable, healthy and quite physically active. I am only having some hard time with my weight (I am rather underweight) but other than that I am ok.
Around the time I was diagnosed, I joined a band that started playing more and more gigs and eventually also came to tour 2 to 3 times per year(Mostly central and eastern europe). Thinking in how bad shape I was and the things I have been through I am actually very happy that I can do what I do and I feel I should share my experiences and some advice with you.
First of all if you are planning to travel/tour tell your doctor! They can provide information regarding the conditions of your destinations and very helpful advice (e.g. avoid drinking tap water from certain areas)
If you are on medication, plan ahead and have enough for your trip and also some extra just in case. If your medication needs to be kept cool invest in a small fridge. Fill it with ice packs even if it can be powered via the car lighter socket. Maybe get some treats and refreshments for your group just so they know to take care of it as well. I also have a very basic first aid kit and I also keep a notebook that explains I carry (in my case injectible ) medicine in a lot of different languages, that is signed and stamped from my doctor.
Make sure your insurance covers you in the places where you will be travelling, if not try to extend your coverage even if temporarily. I am very lucky to be living in Germany which means I am entitled to healthcare throughout most of EU plus some countries more. I have actually needed to be hospitalized in a foreign country once. The process was a bit complicated but ok in the end.
Diet is everything! As much as you might be tempted, play it as safe as possible. Avoid fast food, things you have never tried before and eat as healthy as you can. Better make stops in supermarkets and stock up on things that can survive without refrigeration. Avoid soda and alcohol. In my case this has helped me tremendously. Last tour, I had one beer, 3 shots and 2 drinks in the entire length. You can combine this by being the designated driver, or co-driver. Your bandmates will love you. Also it helps when one of the members is sober when the beer goggles kick in and make all the ladies look like 10s.
Always be prepared for a toilet emergency.There has been quite a few times that when I had to go, I really had to go. This is one of the effects of the condition. In my case I always have hand sanitizer, antibacterial wipes, wet wipes and a boatload of tissues. There have been toilets that I have left them cleaner than what I found them. Moreover, it is very useful to learn to squat and go nature style. Unfortunately I had to learn this the heard way. Last but not least, bring extra underwear.
Get as much rest as possible. I have learnt to sleep in the most amazing places. I am very lucky to have met a drummer who was a siesta master that taught me well. Even 30min of sleep can provide great benefits. If you can lie down even better. Try and get 8 hours in everyday. The closer the better. Every time we get access to a shower, I shower for as long as I can with the hottest weather I can withstand in order to relax my body.
I would be really happy to hear your experiences on touring with a health condition and your advices.
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