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Carpal tunnel syndrome, really?

Feb 19, 2003
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3,273
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Montreal, Qc
Hi,

It’s not my habit to ask for medical advice on the Web. The reason I’m doing so now is I just had a carpal tunnel syndrome diagnosis yesterday, but I’m really not sure about it. Maybe someone will have a personal insight or experience to share.


So, I’ve been having this condition for maybe 3 years where my hands experience spasms and heavy cramps. Here are the salient aspects:

-It doesn’t happen because of tiredness or use. I use my hands all day long, lift heavy objects, etc. and most of the time they’re working perfectly fine.

-The cramping will usually happen when I’m at rest, and apparently completely randomly. I can go for a week without it occurring, and sometimes it’ll happen repeatedly for days. It almost exclusively happens in the evening.

What happens exactly?

-It’ll start with spasms and twitching, in the fingers or palm, which get more intense until basically all the hand starts cramping really severely, making it look like a deformed claw.

-By cramping “severely”, I mean so hard that I can’t simply open up my hand once it starts. I need my other hand and quite a bit of strength to un-claw my cramped fingers.

-It affects my left or right hand in turn, again seemingly randomly.

-When it’s occurring, the only way I can “solve” it is to let the hand cramp up completely, under terrible pain, for several minutes until it finally exhausts itself. But then all my muscles and tendons will ache really badly for days.

-When I try to not let it cramp, for example by relaxing and keeping all my fingers straight, the hand will twitch and try to cramp at any movement I make. And it will last usually until the next morning (meaning it finally goes away after I sleep). While it’s happening, I cannot use my hand for anything, as any movement ends up in a cramp.


It took a while before it could be investigated, but my Dr finally sent me for an EMG this week. And the specialist’s conclusion is I have carpal tunnel syndrome in both hands. He thinks that’s what triggers it all. His solution is I should wear braces.


The reason I’m dubious is I’ve never heard such symptoms associated with carpal tunnel syndrome before. All my research on the subject also doesn’t associate carpal tunnel with that kind of cramping. Usually, they talk of the fingers going numb, which I don’t experience at all.

I’m neither a Dr nor a neuroscientist, but this looks more like wild neuronal discharges to me... I’d be very happy if it is indeed only carpal tunnel, as that can be managed. The other option, that it could be due to nerve or the brain degenerating, is a lot more distressing.


Anyways, I will definitely talk to my Dr again about this in 10 days, when he gets the specialist’s report. But if anybody has any relevant experience to share, or ideas as to where else I could possibly search for clues, I’d appreciate.
 
I think most of these thread are in the Technique corner. There’s been several I’ve responded to, and I had to learn to do things differently both playing and at work due to Repetitive Stress Injury
Good luck

Carpal Tunnel Syndrome ( CTS ) Info
Thanks for the link.
I posted a different thread because my symptoms really differ from everything I'm reading.
Reading through that sticky thread, the symptoms that people describe do include numbness, which I don't experience at all, and cramping after playing a while, which is not my case. I was hoping maybe someone else could relate with my case.
 
A second opinion is always good to have, so it's good that your doc is calling on a specialist.

I had a suspicion that I may have been developing carpel tunnel a while back.

A friend showed me this video, and the stretching exercises were very helpful for me. The last two stretches are not necessarily for carpel tunnel, but address tight muscles that can compress nerves that go down to the hands.

Best of luck to you.
 
Cramping of the forearm muscles is one of the more unusual symptoms of CTS, although I'd expect it to be accompanied by sensory issues like numbness or tingling in you hands and/or weakness of the small thumb muscles. If the specialist did a full EMG and nerve conduction study, the location of the nerve compression had to be narrowed down to the wrist for the CTS diagnosis. Unless they didn't find anything definitive and are just guessing.

Ask questions and if you are not satisfied with the answers get a second opinion.
 
Cramping of the forearm muscles is one of the more unusual symptoms of CTS, although I'd expect it to be accompanied by sensory issues like numbness or tingling in you hands and/or weakness of the small thumb muscles. If the specialist did a full EMG and nerve conduction study, the location of the nerve compression had to be narrowed down to the wrist for the CTS diagnosis. Unless they didn't find anything definitive and are just guessing.

Ask questions and if you are not satisfied with the answers get a second opinion.
Did they do the nerve conduction test? You didn’t mention it. I had carpal release surgery in both hands, after numbness and tingling and a telling nerve test. It was very successful.
I also have had serious hand cramping at times when playing, but not recently. Far be it from me to prescribe anything, but I found the addition of daily magnesium has eliminated cramps in numerous locations.
 
I have CTS myself and have done a lot of research on it, and these symptoms sound nothing like it! Numbness and tingling in the fingers and/or wrist pain are almost always the first symptoms and they are usually related to activity and positioning at least at first. Nerve conduction tests can apparently be misleading, especially when the findings are not 'severe' according to the grading scale they use. I also have cramps (in my legs) and I agree with the suggestion about magnesium supplements (also calcium). These can be very helpful! And stretching is always a good idea.
 
To specify, the test was an EMG (Electromyography), where they sent current into the nerves and measured response time. The Dr concluded from it that I have mild CTS in both hands.
He asked questions about CTS, such as did I experience numbness or did I wake up in pain at night. No and no. But he seemed to think that didn't matter and prescribed braces.

As @EyeBoy says, everything I've read about CTS doesn't align with the type of cramping I experience at all. I did express that concern to the specialist, but he seemed sure of himself.

The reason I wrote this thread is I thought maybe I'm having a very peculiar version of the condition and someone will pop up who's had it as well...

BTW, I mentioned already, but magnesium supplements did nothing for me. Plus I had blood tests that revealed no anemia on that front.
 
To specify, the test was an EMG (Electromyography), where they sent current into the nerves and measured response time. The Dr concluded from it that I have mild CTS in both hands.
He asked questions about CTS, such as did I experience numbness or did I wake up in pain at night. No and no. But he seemed to think that didn't matter and prescribed braces.

As @EyeBoy says, everything I've read about CTS doesn't align with the type of cramping I experience at all. I did express that concern to the specialist, but he seemed sure of himself.

The reason I wrote this thread is I thought maybe I'm having a very peculiar version of the condition and someone will pop up who's had it as well...

BTW, I mentioned already, but magnesium supplements did nothing for me. Plus I had blood tests that revealed no anemia on that front.

So, I hate to go down this path, but go see a neurologist. If a neurologist already saw you for the EMG, find another one.

It might be worth getting an MRI of your head to make sure you don’t have something really scary going on (like MS or ALS or…).

Hopefully the MRI is a waste of your time, and you have nothing that shows up.

I only say this because I got sent for an MRI last year, and it was only afterwards that I realized what they were looking for.

Beyond that, you might want to consider an immunologist just to rule out any sort of autoimmune or inflammatory response going on.
 
I have had odd nerve issues for years and only last fall discovered it was from an old injury that led to Thoracic Outlet Syndrome. Nerve compression in my neck/ brachial plexus that led to all sorts of issues throughout my neck, shoulders, elbows, forearms and hands. Including clawing but not nearly as bad as what you are describing. Fixing my posture as well as neck exercises and various other stretches and exercises all along the path of my nerves from my neck to my hands has done wonders.

Not saying this is what you have but maybe a good rabbit hole to look into. Traditionally it is apparently not well known but I found a website from a nerve compression researcher from Norway which has nearly solved 10 years of issues. I thought it was forever and even sold all my long scale and heavy basses and in 6 months made more of a recovery than I thought possible last summer.

Here is a link to the article that "fixed" me. He also has a lot of good exercises and information for various other nerve issues. Maybe it might help. I learned a lot in general about nerve issues not just T.O.S.

How to truly identify and treat thoracic outlet syndrome (TOS)
 
This sounds like what my father in law has, and it is caused by dehydration and lack of potassium. It happens at the end of the day, seemingly random, doesn’t affect work generally but does happen after working.
My wife is at the drug store and I asked her to buy magnesium, potassium and calcium supplements. I had tried magnesium, but not potassium. You're the 1st one who mentions symptoms similar to mine. And dehydration seems likely, as I have a very bad habit of not drinking much during the day... So I'll give that a shot before I get to see my Dr again.